Patient Advisor: Reflections on Partnership Conference
Posted on December 7, 2017 by Darlene Gallant
I first became involved in patient/health advocacy when I became an accidental advocate for my brother, who was dying from cancer. Following this, I was an advocate for my father when he was dying from cancer. My advocacy became a full time job and a life-changing purpose when my husband Dave was diagnosed with idiopathic pulmonary fibrosis (IPF). I went from being a spouse and a partner to being labeled a caregiver. During his illness, I became a patient advocate, advisor, partner and champion. Through this terrible period, I noted a lack of information, support and/or assistance for patients and their families diagnosed with pulmonary fibrosis (PF).